First, I would appreciate it if you could please pray for my parents. My mom fell Tuesday morning and bruised her ribs pretty badly. Luckily she did not break anything but, is in a great deal of pain. She has had two episodes in the last couple of weeks where she has fallen backwards. Luckily the first time she was able to catch herself. Unfortunately she could not the second time. She has had some other concerning symptoms so she is having some testing done next week to look for a cause. If you know my mother, you know that she is one tough cookie and to see her in such pain breaks my heart. I know this is hard on my dad also so your prayers are definitely appreciated.
This last month has been very busy as usual around here. We took another trip up to Mayo to meet with our Neurologist. We finally got approval from our insurance to start the girls on their new med. Before starting it we had to have some initial testing done to give us a baseline. We started the med this past Sunday. While we are starting that one, we are decreasing two other meds at the same time so there is a lot of adjusting going on. The seizures haven't really increased or decreased these first few days so hopefully this will be a smooth process. Lindsey did have a seizure out of nowhere Thursday evening and cut her eye open with her glasses. She now has some steri-strips on it and a real pretty black eye. Have I told you seizures suck? A perk from the adjustment in meds is that we have been able to get rid of their afternoon dose. We are very happy to be down to twice a day dosing. I don't think we have had that since they were babies.
Also this past month we enrolled the girls in an adaptive gym called Courage League Sports. They absolutely love it! They are in a super hero exercising class two nights a week and a yoga class on Saturday mornings. It has been challenging to keep the girls from over-exerting themselves and we have had a few seizures there because of it. They have so much fun and work up a good sweat! It is a great way for them to get some extra PT and OT too. I absolutely love taking them there to get them the social interaction with other kids and to get some much needed exercise. If you have kids who could benefit from an adaptive gym, I urge you to check them out. www.courageleaguesports.com.
("Lauren...you are not in charge!" "Yes I am! Mom...tell Lindsey to stop it." Mom...come here right now!" "Mom...what color is Squeeze?" "Mom....can you get me some more milk?" "Mom...I said it first." "No, I said it first!" "Wiener!" (Lauren) "Shitzel!" (Lindsey) Just a few of the interruptions I have had in the 10 minutes I have been blogging...never a dull moment, friends!
Delaney and Mason have been keeping busy this summer. They both spent some time away from home with cousins. Delaney has been busy with work and volleyball and Mason is in a couple of golf leagues this summer. They have their schedules for school already and one is excited...the other is not. Can you guess who? We had Delaney's senior pictures taken last month and they turned out really cute. We spent about two hours trying to choose from 50 different poses down to 10. Now we have to figure out which ones to purchase. I don't remember it being this difficult when I was a senior. Speaking of when I was a senior, we had our 25th class reunion last month. We had 18 of the 39 in attendance which I thought was pretty good. Only three boys though... We had a great time sitting around catching up and reminiscing about the olden days. Good times...
Lauren: "Mom...come here for a second!" Me: "Just a minute." Lauren: "I don't have a minute!"
My dear friend Colene and her kids came for their yearly visit from Indiana last week. It was so great to see them and spend a couple of days with them. L&L have a hard time remembering people they haven't seen in a while but, they always remember Colene which I think is so cool. I wish we lived closer together so we could spend more time together. I sure do miss them. Maybe someday... Below is a picture Colene took of the girls while she was playing Old Maid with them. Lindsey is so competitive that when she gets the old maid, she hides it so she doesn't end up with it... If you look really close you will see it between the girls next to the red box. You can guess which one is Lindsey by the guilty look on her face.
The next thing we know, the kids will be heading back to school. Woo hoo! Oh, did I just say that out loud? No, it has been a good summer so far. I have been taking advantage of respite more this summer than I have in years past. It gives me a chance to spend some much needed alone time with Delaney and Mason and get some stuff done around here. Matt and I still try to take advantage of our date night also. Sometimes we are lucky enough to go alone... We have been swimming a few times. Unfortunately, they have had seizures more often than not while swimming or just after they get out of the pool. The last time we swam we tried a new trick to try to keep their body temperature from fluctuating so much when transitioning from the pool to the hot air and it worked well. We will try it again next time and hopefully it will help us out. Matt has been ready to take the pool down since the first seizure.
The chaos has continued but, I have succeeded in getting this blog finished. I would like to thank Blue's Clues and Eggo waffles for allowing me time to put my thoughts into words. Until next time...
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